EveryLife Foundation for Rare Diseases

The EveryLife Foundation for Rare Diseases educates, supports and amplifies the voice of rare disease patient advocates.

General Information
Company Name
EveryLife Foundation for Rare Diseases
Founded Year
2009
Location (Offices)
Washington, United States +1
Founders / Decision Makers
Number of Employees
65
Industries
Biotechnology, Health Care
Funding Stage
-
Social Media

EveryLife Foundation for Rare Diseases - Company Profile

As an influential player in the biotechnology and healthcare industries, EveryLife Foundation for Rare Diseases has been making a significant impact since its establishment in 2009. The organization's commitment to the support and advocacy of rare disease patient advocates is exemplified through its slogan, "The EveryLife Foundation for Rare Diseases educates, supports, and amplifies the voice of rare disease patient advocates." The foundation's mission to empower the rare disease patient community is reflected in its dedication to advocating for impactful, science-driven legislation and policy. By championing equitable development and access to lifesaving diagnoses, treatments, and cures, the foundation is actively contributing to the advancement of healthcare for individuals with rare diseases. Based in the United States, the EveryLife Foundation for Rare Diseases acts as a catalyst for positive change within the rare disease community. While specific investment details are not currently available, the foundation's work is noteworthy for its potential to drive meaningful progress in the field of rare diseases. With an ongoing focus on education, support, and amplification of the patient voice, the foundation stands as a beacon of hope for those affected by rare diseases, and its efforts have the potential to attract impactful investments and partnerships in the future.

Taxonomy: Rare Diseases, Patient Advocacy, Biotech Innovation, Science-Driven Policy, Patient Engagement, Public Policy, Nonprofit Organization, Legislation, Treatment Access, Advocacy, Policy Impact, Patient Support, Medical Research, Equitable Access

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