National Organization for Rare Disorders

National Organization for Rare Disorders (NORD) is a non-profit organization founded in 1983 with a mission to support individuals with rare diseases and the organizations serving them. NORD, alongside its 330 patient organization members, is dedicated to advancing the identification, treatment, and cure of rare disorders through education, advocacy, research, and patient support services. The organization plays a pivotal role in the rare disease community by collaborating with stakeholders including patients, families, researchers, medical professionals, students, and companies developing orphan products. NORD's significant partnerships extend to government agencies such as the National Institutes of Health (NIH) and the Food and Drug Administration (FDA), reflecting the organization's influence in the healthcare sector. Serving as the official sponsor of Rare Disease Day in the US, NORD is actively involved in raising awareness and enhancing access to treatment and medical representation for individuals and families affected by rare diseases. This underscores NORD's profound dedication to improving the lives of those impacted by rare diseases through its impactful programs and initiatives. To learn more, please visit the NORD website at www.rarediseases.org. You can also follow NORD on Twitter at @RareDiseases.