EspeRare foundation

EspeRare is a not-for-profit organization established in Switzerland in 2013 with a mission to address the unmet needs of children affected by rare genetic diseases. It collaborates closely with patient groups and other stakeholders to rescue and reposition discontinued therapies with high potential. EspeRare's focus on patient-centric R&D and repositioning of therapies demonstrates its commitment to advancing novel treatments for underserved patients. The organization's efforts bring hope for a better future to children and families affected by these diseases. With a focus on addressing severe and neglected therapeutic needs, EspeRare aims to contribute significantly to the rare disease space.